10/30/2018

It took a village to kill my brother


Published in USA Today on October 31, 2018.
https://www.usatoday.com/story/opinion/voices/2018/10/30/addiction-treatment-support-medical-evidence-alcoholics-anonymous-column/1809737002/



My brother died alone in a cheap Long Island motel this past July from a disease commonly treated by unlicensed caregivers using nearly century-old, faith-based practices rather than modern medicine. 

Tim was a successful businessman, loving husband, and adoring father of two young girls until alcoholism reduced him to a tormented shell of an addict.  When he died at 49 he was in what is called the End Stage, a living hell where withdrawal symptoms are so severe that the alcoholic has to drink incessantly just to mitigate the anguish.  Tim was incapable of helping himself, and family members and friends were either disengaged or offered ill-advised support, both due to ignorance or misconceptions about the disease. 

One misconception is that addiction is caused by lack of willpower or character flaws.  Not true.  It is a medically-recognized, chronic disease of the brain.  Dr. Nora Volkow, Director of the National Institute on Drug Abuse, explains that this misconception “arises from a false belief that they have willfully abandoned their responsibilities in favor of a search for pleasure.”  In fact, she notes that alcoholics have a diminished ability to feel pleasure from alcohol.

Even Alcoholics Anonymous’s (AA) 12-steps ignore this medical wisdom.  They advise members to surrender to “God” who will, in turn, remove any “defects of character” and “shortcomings,” and restore them to “sanity”.  Given AA’s messaging, it’s no wonder that certain loved ones watched passively from the sidelines believing Tim’s fate was out of their hands. 

Having been raised by a recovering alcoholic, we heard inspiring stories of AA, but they were anecdotal.  No formal, comprehensive study has ever been conducted by AA in their 83 year history and outside, peer-reviewed studies estimate a five to ten percent success rate. 

According to the National Institute of Health approximately 88,000 Americans die annually from alcohol related causes.  Yet, Columbia University’s 2012 study on addiction medicine found that “only a small fraction of individuals receive interventions or treatment consistent with scientific knowledge about what works.” 

Neurobiology has found that not every alcoholic responds favorably to any particular treatment as with any chronic disease.  It’s no surprise then that Tim failed to find sobriety in any of the 16 treatment facilities endorsing the 12-steps that he entered in his last three years.  Although medical professionals generally recommend that hardcore addicts spend 90 to 180 days in an inpatient facility, he usually stayed about 30 days. 
   
Last winter, my brother became a “snow bird” addict and entered a “Florida Model” treatment center.  Originating in its namesake, these low-overhead facilities offer walk-in, addiction counseling by day and separate group homes at night.  They are proliferating all over the country, particularly in the Sun Belt, because the insurance companies favor their inexpensive approach and no business licensing is required in many states.

Making matters worse, many of those treating this potentially fatal disease are also not licensed or hold college degrees.  According to the Columbia University report only six states require counselors to have at least a bachelor’s degree.  Absolutely no licensing is required in 14 states.

Physicians can’t compete with individuals and facilities charging far less because of far less formal training.  According to the Columbia report only 1,200 U.S. physicians out of nearly a million are even trained in addiction medicine and until 2016 only psychiatrists could get board-certified. 

Just before my brother died, I was investigating New York State’s Kendra’s Law which can involuntarily commit an individual to a treatment facility if they are “mentally ill” and cannot safely live on their own.  Unfortunately, the law is ambiguous when it comes to alcoholics.  And it didn’t help matters that only one other family member was supportive of the idea, neither of us being the next akin.  Although Tim was clearly on death’s doorstep having been treated for serious medical issues at no less than nine emergency rooms in his last year, I could not find anyone who could advise me on how to use the law to save him. 

In hindsight I don’t believe Tim let us down, so much as the village failed him.  No addict should be exploited by caregivers and insurance companies, neglected by government authorities, or left to their own devices by family and friends.  They are loved ones suffering from a painful and dehumanizing disease, and should be tirelessly afforded our support and all the appropriate, evidence-based, medical treatment to help them get well.  This may not have saved Tim, but I believe it would have given him a better fighting chance.